| Who
am I? What do I believe?
These are questions I've been asking myself for years!
I was born in Carlisle,
Cumbria, UK
and moved to Canada
in March 1982; I currently live in Carp,
Ontario. I studied
electronic, control, and computer engineering and am a British
chartered
engineer (CEng). For the past 22 years I've been earning my living
as a technical writer/manager. For the last five years I've been
working for Nortel and
currently label myself an Information Engineer.
For years I was not a happy
person! I didn't seem to have energy or enthusiasm for anything.
I was very irritable and easily annoyed at both home and work. I
attended an anger-management course in 1998 and attended a number
of counselling sessions during 1999-2000. In June 2000 my Medical
Doctor (MD) prescribed 20mg/day Paxil
to put me on a more even keel. It worked, but there were a
number of side effects: I felt kinda numb (no, I don't mean dumb)
and I lost interest in sex! In addition, I was plagued with an almost
constant yeast infection.
Diagnosis
and initial treatment
In November 2000, my eyesight
changed dramatically over a one-week period , my long-distance vision
became very blurred and I found it difficult to read anything with
my glasses. I was also very thirsty and drinking a lot of water.
It was about time for my annual check up anyway. All the usual blood
and urine
tests were initiated. My MD made a diagnoses of Type
2 Diabetes (see Canadian
Diabetes Association and American
Diabetes Association) because I had a fasting blood glucose
level of 16.7mmol/L (multiply
by 18.02 to convert to 301mg/dl) and my glycosylated
hemoglobin (HbA1c)
level (11.2%) indicated that
my blood glucose levels had been high for at least 2-3 months. My
cholesterol
level (5.98) was also higher
than normal but my MD decided to ignore it until my next checkup
in March 2001. She immediately started me on 500mg/day Metformin
(Glucophage). After two weeks the dose was increased to
500mg twice/day. I experienced diarrhea for a few days. Protein
was found in my urine and my MD prescribed 2.5mg/day Inhibace
(Cilazapril); which was increased to 5mg/day on January
25, 2001; and 10mg/day on March 15 2001. Inhibace is usually
prescribed for high blood pressure, but in my case it is being prescribed
to act as an ACE
inhibitor to help my kidneys. My initial reaction to my Diabetes
diagnosis was disbelief followed by annoyance with myself for neglecting
my health and allowing Diabetes to blossom.
My MD referred me to the Ottawa
Hospital for a Diabetes information and training session
in December; however, I couldn't attend because my father
died in late
November 2000, and I attended his funeral in the UK. My blood glucose
control during this time was less than stellar! I attended
the Diabetes
information and training session on January 4, 2001. The session
was useful but the diet advocated seemed weighted towards
high carbohydrates
and the doctor seemed less than enthusiastic when I mentioned I
was taking a Green Barley supplement; the expectation
seemed to be that I was there to be told what to do and
not to question
the advice of Diabetic Clinic staff! That's when I decided I needed
to consult with a Naturopathic
Doctor (ND) for supplementation guidance. I attended
a more extensive two-day diabetes training course on March
6-7, 2001 at the Ottawa
Hospital; again I found the training useful but noted
the strong resistance to taking supplements (I was told
you can get all your
nutrients from a well-balanced diet) and told not to trust information
I read on the Web. Again I received the impression that
the Diabetes
Clinic staff consider themselves the experts and that I should
only trust the information they give me.
Within
two weeks of being diagnosed, I had purchased a Roche
AccuSoft/AccuChek
Advantage Blood Glucose meter and starting monitoring my blood about
2 to 4 times per day during November and December 2000. I subsequently
changed to a LifeScan FastTake
meter because it needs a smaller blood sample, is faster, and has
the ability to upload data to my PC. I would have preferred the
TheraSense Freestyle
meter, but I couldn't find a local supplier. On March 9, 2001, I
exchanged my Roche Advantage meter for a new LifeScan Ultra
meter and started using it on March 26. See meters
for my evaluations and how to use a meter to determine what to eat
and when.
My average fasting blood glucose
level was 12.8 mmol/L during
November and December 2000. Although
improved, I obviously needed to do something! Especially when I
learned that my prospects using traditional treatment methods didn't
look too promising (after 7-10 years many Type 2 Diabetics end up
on Insulin
as well as increased oral medications).
Selecting
a diet and supplements
Over Christmas 2000, I started
looking for the best possible treatment methods to ensure I
live
to a ripe old age without loosing any of my major parts! I discovered
that a healthy diet and
regular exercise are
very important to controlling Type
2 Diabetes. In January 2001, I started myself on a diet
based loosely on the The
Age-Free Zone by Barry Sears and the Fresh
Start Metabolism Program by Cathi Graham (not a relative).
My main meal targets are 15g fat/ 30g protein/ 45g carbohydrates
(note the 1/2/3 ratio and that this equates to 30/30/40%
calorie contribution ratios; using 1g fat=9 calories and
1g protein/carbohydrate=4 calories). Most of the time, I
try to eat carbohydrates with a low glycemic
index. I also started myself on a vitamin/herb supplement
regime based largely on the recommendations made by Kathi
Mead, ND, in Natural
Treatments for Diabetes. My next step is to get started with
a regular exercise program;
I've been saying this for the past 5 years, I guess I'll get
started
in 2006! For the past 2 years I have done some exercise, but
not on a regular basis; during the summer of 2004-2005 I did
swim
every day and in 2004 I played soccer once a week but I didn't
play at all in 2005 because of sore
knees.
I started logging what I eat
at each meal and recording my blood glucose levels immediately before
and two hours after each meal (see a sample from my Food
Diary). By the end of January 2001 my average blood glucose
level was down to 8.2 mmol/L (147.8mg/dL) and I'd reduced by Metformin
to 500mg/day by January 5, 2001. My eyesight is better than it has
been for years and my yeast infection cleared up. My long-distance
vision returned to normal and occassionally I was able to read without
my glasses (this lasted for about a month, I now have to wear reading
glasses again). As of April 1 2001, I'd only lost about 6 lbs (from
208 to 202 lbs), I guess while I'm eating better, I still need to
reduce the amount I eat! Overall, I have more energy and I'm enjoying
simple things again (like a leisurely drive in the countryside).
Something is working. Paradoxically, my Diabetes diagnosis has also
made me more aware of how valuable life is and focusing on dealing
with the disease is enabling me to enjoy life more.
I'm noticing that my blood
glucose level is still high first thing in the morning (8 mmol/L
and above) and I'm investigating why and trying different things
to get it down. I learned that this effect is known as the "dawn
phenomena" and is due to the pancreas
releasing glucagon
that causes the liver
to release glycogen
in response to a low blood glucose level and in anticipation of
a higher level of activity. On January 30, 2001, due to Metformin's
effect of limiting the release of glycogen
by the liver, I decided to start taking my 500mg Metformin
and 5mg Inhibace in the evening, instead of in the morning.
I'm also being more careful what I eat in the evenings. As of July
11, 2001, this change hadn't affected my morning readings. I started
taking an additional scoop of Whey protein around 10:00pm in October
2001 to minimize the withrawal symptoms while weaning myself off
Paxil; a side benefit was that on most mornings my blood
glucose level was under 7 mmol/L (126.1 mg/dL).
I've been taking a number of
supplements since January 2001
and reviewing and recording any changes on a monthly basis.
Digression...a
medical emergency
I had a blood sample taken
on Tuesday January 23, 2001 to check the impact of Inhibace.
On Wednesday, January 24, around 6:00pm I received a phone call
from my MD's nurse asking me to go to the hospital immediately!
I asked why? "The level of potassium in your blood is high,
please go to the hospital immediately!" I felt fine, better
than I had felt for years. However, I happened to be browsing at
the time, so I searched for "high potassium". At the top
of the search results list was a link to Dialysis
Report Card. It states that "Elevated potassium levels
lead to ventricular fibrillation with cardiac arrest. This is a
medical emergency." I reached a quick understanding why the
nurse wanted me to go to the hospital immediately! I went! I went
immediately! I was there for over 3 hours and eventually told that
my serum potassium (K+) level was 4.2 (the normal range is 3.5 to
5.8) and that bad results were not uncommon. I was relieved! Lesson
learned? Diabetes is a serious condition and we should pay close
attention to how we feel and react to anything newly introduced
into our bodies and take immediate action to anything unusual.
Aches,
pains, concerns, and progress
For the past few weeks I've
noticed a weakness and aching in my right elbow. I analyzed
what
supplements I
was taking to see what could be causing this. I concluded that
it
was probably my MSM
supplement, so I reduced it from 2000mg/day to 1000mg/day on February
6, 2001. By February 9, the weakness and aching was a lot less;
on February
12, I stopped taking MSM and started the Natural
Factors GlucoBalance supplement. Although my blood
glucose control is much better, I suspect it is mainly due to
my diet (I
would attribute 80% of successful blood glucose control to diet).
Started Glucosol
supplement on March 3, 2001, and adjusted existing supplement dosages;
within a week my blood glucose levels were reduced by 20%!
Since I now believe that Paxil
is dealing mainly with symptoms induced by the onset of Type
2 Diabetes, I started weaning myself off it; I'm down to 10mg/day
and should be off Paxil completely before the end of
February. I stopped taking Paxil on February 12 2001.
During the week I become more irascible and, at the insistent
promptings of
my wife, I started the Paxil again at 20mg/day. I seemed
to have picked a bad time to stop! The stress level at work had
increased significantly (I work for Nortel, who at the
time were laying off 20,000 employees; and, from day-to-day, I
was wondering about job security and how to feed and house my family
if I lost my job). In addition, I think my body had enough to deal
with with my change in diet and supplement regime. I planned to
wean myself off Paxil later in the year. It also occured
to me that how I deal with stress
was probably a factor that contibuted to my Diabetes, and that
I needed change how I reacted to stress. After reading, in September
2001, that Paxil causes a depletion of glutathione
in body cells which in turn causes glucose metabolism problems,
I decided to try again and wean myself off Paxil. See
my
Paxil withdrawal
experiences. I stopped taking Paxil completely by
November 5 2001. To compensate for some of problems dealt with
by Paxil,
I started taking St
Johns Wort and Kava
but stopped because they didn't work for me. After a severe depression
resulting in two months off work, I started taking Manerix
in May 2002. Based on my personal experience and research, I believe
that most diabetics should not be using any type of SSRI drug.
I
also think that all diabetics could improve their overall condition
by adding a Whey protein supplement to their diet.
On February 12 2001, I awoke
with a mild rash on the back of both hands. Cause? My initial reaction
was to suspect an allergic reaction to one of my supplements. However,
I hadn't changed anything. Cause? I remembered that I hadn't worn
gloves the previous day and that it was very cold that day; I concluded
I had a mild case of frost bite and suspect that my current supplements
are making my skin more sensitive. On February 14, I felt lightheaded,
very tired, had been experiencing diarrhea in the mornings for a
few days, and my elbow and muscles were still aching. Need to check
with MD/ND about possible causes. On the positive side, also on
February 14, my fasting blood glucose level was 6.4 mmol/L;
this is the lowest its been since I started monitoring my blood
glucose levels last year.
During the week, March 5-11
2001, I had 4 days when my fasting blood glucose level was below
7 mmol/L, the main contributing factor appears to be Glucosol,
which I started taking on March 3, 2001. On March 9, 2001, had blood
taken for a number of tests.
Saw my MD on March 15, 2001; my blood test results show marked improvements
from November 2000. My fasting blood glucose level has dropped
from 16.7mmol/L to 7.0mmol/L (58%
improvement). My HbA1c
test showed a similar improvement, from 11.2% to 6.6% (41%
improvement). I plan to continue with my diet
and supplements
and get started on an exercise
program. In May 2001, my HbA1c
was 6.5%, a slight improvement (-1.5%)
from March; in August 2001, my HbA1c
was 6.7% a slight worsening (+3%)
from May; in November 2001 my HbA1c
had improved to 6.4% (-4.5%).
While my blood glucose levels are under control, but with room for
improvement, my cholesterol
and triglycerides
levels are still too high. I'm particularly confused by, and concerned
about, the significant increase of my triglycerides from 1.04
in March 2001 to 2.44 in November 2001, a +135%
increase! For the next six months I will be focusing
on reducing my triglycerides. What was I doing between November
2000 and March 2001 to reduce my triglycerides from 2.25 to
1.04 (54% improvement
)? At present, I've only been able to identify two items: I was
eating a lot more eggs then (about 12 to 2 eggs/week now) and I
changed the amount of B3 from 90mg/day to 450mg/day in February
2001.
I thought I could get better
guidance on controlling my diabetes from an endocrinologist
than
I was getting from my family doctor Dr Mundi. I was wrong! I went
to see a Dr Lochnan at the Ottawa Civic hospital on December
3,
2001. What a waste of time! I was seen by a medical student who
took a precursary medical history and performed a superficial
physical
examination; I was then allowed to talk to Dr Lochnan for about
5 minutes. Dr Lochnan's focus seems to be on getting fast results
and ongoing control with the use of drugs; she even said that I
should be taking more Metformin because my HbA1c level
of 6.4 was too high; there was no discussion of increasing
my exercise
level or eating less. The only supplement that she thought was
of any use was Folic Acid and said that she was unaware
of any of the double-blind clinical studies on any of the
other supplements
I'm taking. When I mentioned I had consulted with a naturapathic
doctor about my use of supplements; she obviously didn't think
much
about naturapathic doctors or that they could possibly contibute
anything that might be helpful. I left feeling that I wasn't
doing
too well, that I was an idiot, feeling very stressed, and with
a significantly higher blood pressure than I had before I
talked to
her! I will not be visiting Dr Lochnan again nor will I be recommending
that anyone see her! I find myself wondering about how many
of Dr
Lochnan's long-term patients end up on multiple medications and
insulin and suffer from diabetic complications! How accountable
are doctors for the long-term treatment of patients? Who tracks
and audits how well patients respond to treatment options?
I talked
to Dr Mundi the next day and agreed I would continue to work with
her as my main point of contact to the rest of the medical
profession.
I did see another endocrinologist Dr Phyllis Hierlihy on April
15, 2002 and urologist Dr Sahajpal on July 18, 2002 (no problems
found).
Dr Hierlihy thought I was doing very well but recommended I increase
my Metformin dose from 500mg once/day to 500mg twice/day
and suggested I try Starlix
(Nateglinide)
to try and lower my post-meal blood glucose levels. I followed
her
advice and since then my HbA1c has been under 6%!
Throughout 2001-2003,
although they didn't deteriorate, I wasn't successful in improviing
my
lipid
levels. So for 2004-2005 I focused on improving my lipid
profile: reducing my triglycerides
and improving my cholesterol
levels. While Dr Mundi was on materity leave another doctor recommended
that I try Crestor and
gave me some samples. When I got home I did a search on Crestor
and very quickly discovered that the rate
of
kidney damage in Crestor patients is 75 times higher than in patients
taking other cholesterol drugs; since I already have signs of kidney
damage, I did not take Crestor! I printed out the materials and
talked to
the
prescribing
doctor
who showed
no interest in the materials I'd collected and stated that I couldn't
trust information from the web and that she trusted her own sources!
The end result was that I stopped trusting her! In March 2005,
Health
Canada advises patients about the risks of CRESTOR® (rosuvastatin);
there are also currently a number of Crestor
lawsuits in Canada.
During 2002, I was
successful in getting my blood glucose under control;
my HbA1c was
below 6% for the last 9 months of 2002 (as of March 2004, 24
months). At times I haven't watched my diet very well or even
recorded what I ate. I do remember buying a four-pack of Twix bars
and eating all four within one hour! I didn't bother checking
my
blood glucose levels for the rest of the day! To try and gain
greater
control before I slide too far back into bad habits, I purchased
a software product called Diabetes
Diary and started using it in January 2002 but I didn't
use it much throughout 2002-2006! Another area for improvement!
During 2003-2006
I planned to track what I ate using RMRdiet or Diet & Exercise
Assistant on my Sony Clie; I didn't! Indeed, I haven't done
very well throughout 2006 and in January 2007 my HbA1c had reached
9.6! Time to get back on track!
Plans
and goals
I plan to continue my involvement
in Diabetes education. I will continue as a registered volunteer
with the Canadian
Diabetes Association and updating my http://diabetestype2.ca/
web site. In early 2002, I participated in a new
Health Canada diabetes awareness program in which my story,
along with others, was told. In December 2002, I joined the Canadian
Diabetes Association Professional
Speakers Bureau to present sessions
on Preventing and Controlling
Type 2 Diabetes. In May
2003, I was awarded a Special
Achievement Award by the Canadian
Diabetes Association for my volunteer work. I plan to continue
my volunteer work.
My overall goals are to continue
to keep my HbA1c
below 6% and my weight to 180 lbs with less
than 25% body fat by December 2008. I'm searching for other
things I need to do. My current goals are:
- Follow, for each meal,
the principles of Zone
Diet with 15g fat/30g protein/45g carbohydrates for each
main meal and a maximum of 1800 calories per day with a focus
on using
carbohydrates with a low glycemic
index. Also adopt more of the recommendations from the Fresh
Start Metabolism Program by Cathi Graham. Eat more low
glycemic index foods using my Palm-based
Glycemic Lists SmartList as
a guide.
- Record, daily, all the
food I eat using the Palm-based Diet & Exercise
Assistant
software.
- Monitor and record
my blood glucose 4 times/day immediately before and 2 hours after
each main meal.
- Achieve a monthly average
blood glucose level below 6.0 mmol/L (108 mg/dl).
- Improve my lipid
profile by December 2008. Cholesterol:
increase HDL and maintain above 1.2; reduce and maintain
LDL below
2.5; and reduce Cholesterol/HDL ratio to below 4.0. Reduce and
maintain triglycerides
below 2.0.
- Reduce weight to
180 lbs with a body fat level of less than 25% by December
2008.
- Exercise
3 times/week for 30 minutes/day using HealthRider;
walking; or swimming.
- Learn to breath
better! Review and apply the ideas espoused in the Body
Flex videos by Greer Childers by July 2008.
- Initiate a full complement
of blood tests
and see my doctor every 3 months.
- Maintain and update monthly
an online diary of what I eat,
my blood tests, my supplements, and my research notes.
- Review, adjust, reduce,
or change dietary supplements
and medications monthly.
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